This site features representations of epilepsy in art and culture. It does not avoid misrepresentations and distortions of the epileptic experience, but instead highlights them and invites reader comment. I appreciate receiving your feedback on the site, its subject and approach to it, and anything else you’d like to tell me.
My own involvement and interest in this subject comes from my teenage son, who has had petite mal seizures since the age of 5. I have watched with pride as he “owns” his condition, tries to understand it and describes it comfortably to others. His experience and mine with him has led me to seek out cultural representations of epilepsy, and to observe with interest the mix of science, fact, superstition, fear and compassion that are mixed into these artistic efforts.
In the best case, this site will be a resource for anyone interested in how people make meaning of epilepsy, and thus how they come to live with it and alongside it.