Video & Performance: Miguel Andrés
Here’s the story of an actress who incorporates her seizure disorder into a performance. At least she planned to do so.
The Guardian weighs in.
Finally, here’s a a review of the performance.
This article by Peter Wolf of the Danish Epilepsy Centre ( Dianalund & National Hospital, Neurocentre, Epilepsy Clinic, Copenhagen, Denmark) is close to the heart of the artofepilepsy.com project. The author categorizes epilepsy in literature in a typology. Wolf describes epilepsy written about from personal experience of seizures (what I call self representation), epilepsy written about from close observation, and epilepsy written about from unknown sources or third party sources. It is a great survey of epilepsy in literature.
Sometimes I find fragments that I simply don’t understand. Because both neurophysiology and seizure are mentioned, it may be a commentary on, or reference to, epilepsy. Perhaps you can make sense of this.
Harry Benson is the first human being of his kind, the first terminal man, a human being whose brain is connected directly to a computer. His condition is called epilepsy, and yet it renders him homicidally violent. The implanted computer, intended to cure him, makes things worse….
Someone thought this was funny.
I remember the Andromeda Strain clearly because it was the first adult novel that I ever read, probably in about 1972. When I finished it my father was impressed and told me if I could read a book like that, I could read anything. Wow! I was 12 or 13 and I had arrived.
Of course, in the Andromeda Strain one of the lead scientists is portrayed as having epilepsy. A clip of the scene in which her photosensitive epilepsy manifests itself in a seizure is found here.
In the novel Dr. Peter Leavitt, a clinical microbiologist; suffers from epilepsy. In the movie a female scientist named Ruth is the person with epilepsy. Epilepsy causes her to miss a crucial bit of information. It is a weakness that she conceals, and that contributes to the danger.
Beside the epilepsy themes, it’s fun to watch this old science fiction movie, now 40 years old, and see the cathode ray tubes and teletype machines and other technologies that so clearly mark this movie in time. Once these machines placed the movie in the near future, now they place it in the distant past.
David Axelrod, attempting to argue that epilepsy matters in the way that things people care about matter, compares it to the challenge of terrorism. Or does he? Perhaps he means that a seizure is like a terrorist attack? I can’t really tell from this report what he meant.